Community research desk

    Research on PCOS & Fibroids in BIPOC Communities

    A searchable library of peer reviewed studies, federal data and public records on health disparities, diagnosis gaps and treatment outcomes for Black, Indigenous and People of Color communities.

    130

    publications and verified sources in our database

    39

    studies written up in full with key findings

    3x higher risk

    Fibroids are about 3 times more common in Black women than white women

    Source: Catherino et al., Semin Reprod Med 2013

    33.6% wait 2+ years

    33.6% of women with PCOS waited more than two years for a diagnosis, and 47.1% saw three or more health professionals along the way

    Source: Gibson-Helm et al., J Clin Endocrinol Metab 2017

    $33M in FY2023

    NIH awarded roughly $33 million across 87 PCOS projects, low relative to how common the condition is

    Source: NIH RePORTER award data
    New name, same condition

    PCOS is now PMOS

    Polycystic ovary syndrome has a new official name, Polyendocrine Metabolic Ovarian Syndrome. The diagnosis did not change. If you were diagnosed with PCOS, you have PMOS, and your records and care plan are still valid.

    Why

    The old name centered ovarian cysts, which are only one part of the picture and are not required for a diagnosis. The Endocrine Society describes PMOS as an endocrine and metabolic condition affecting 1 in 8 people, more than 170 million worldwide.

    Who and when

    A global consensus process published in The Lancet on May 12, 2026, led by Helena Teede and colleagues for the Global Name Change Consortium.

    In the clinic

    By July 2026 NICE draft guideline documentation stated that in May 2026 polycystic ovary syndrome was renamed PMOS.

    On this site

    We use PCOS and PMOS together so nobody gets lost while systems finish the switch.

    Browse the research

    Featured write ups, the full source library, and a quick reality check.

    39 of 39 shown
    PCOS
    Global health fact sheet
    2026

    Polycystic ovary syndrome, WHO fact sheet (updated 22 January 2026)

    World Health Organization • World Health Organization, Newsroom fact sheets (2026)
    Population: Women and girls of reproductive age worldwide

    The World Health Organization's global reference on PCOS, revised on 22 January 2026. The revision raised the estimated prevalence to 10 to 13 percent of women of reproductive age and restated how much of the condition still goes unrecognized.

    Read full article
    Diagnosis & Naming
    Global Consensus Statement
    2026

    Polyendocrine metabolic ovarian syndrome, the new name for polycystic ovary syndrome: a multistep global consensus process

    Teede H, Khomami MB, Morman R, Laven J, et al. • The Lancet (2026)
    Population: Global

    The global consensus paper that renamed polycystic ovary syndrome to polyendocrine metabolic ovarian syndrome, published 12 May 2026.

    Read full article
    Diagnosis & Naming
    Professional Society Announcement
    2026

    Polyendocrine Metabolic Ovarian Syndrome (PMOS) is the new name for PCOS

    Endocrine Society • Endocrine Society newsroom (2026)
    Population: General and patient audience

    Public announcement from the Endocrine Society explaining that the condition long known as polycystic ovary syndrome has been renamed Polyendocrine Metabolic Ovarian Syndrome.

    Read full article
    Diagnosis & Naming
    Draft Clinical Guideline
    2026

    NICE draft guideline documentation adopting the PMOS name

    National Institute for Health and Care Excellence (NICE) • NICE guideline in development GID-NG10436 (2026)
    Population: Clinicians and health systems

    United Kingdom draft clinical guideline documentation that adopts the new PMOS terminology and adapts the Monash international evidence based guideline.

    Read full article
    Fibroids
    Cohort Study
    2025

    Uterine Fibroid Diagnosis by Race and Ethnicity in an Integrated Health Care System

    Mitro SD, Dyer W, Lee C, et al. • JAMA Network Open (2025)
    Population: Multi-ethnic cohort

    Cohort study of nearly 2 million patients examining differences in fibroid diagnosis rates across racial and ethnic groups from 2009-2022.

    Read full article
    Fibroids
    Scoping Review
    2025

    Uterine Fibroids Among Caribbean and African Women in the UK: A Rapid Scoping Review

    Kwansa AL, Ruddock F, Anumba DO, Walters P, Ejim M, Adjei-Mensah L • medRxiv preprint (2025)
    Population: Caribbean and African women in UK

    Scoping review examining fibroid prevalence, risk factors, and outcomes for Caribbean and African women in the UK healthcare system.

    Read full article
    PCOS
    Review
    2025

    Polycystic ovary syndrome: Criteria, phenotypes, race and ethnicity

    Baba T • Reproductive Medicine and Biology (2025)
    Population: Multi-ethnic populations

    Review examining phenotypic disparities of PCOS among various racial and ethnic populations, highlighting the need for personalized approaches.

    Read full article
    Fibroids
    Scoping Review
    2024

    Uterine fibroids and Black people of African descent globally: a scoping review protocol

    Jefferies K, et al. • BMJ Open (2024)
    Population: Black women globally

    A comprehensive scoping review examining the global burden of uterine fibroids among Black women of African descent, highlighting significant health disparities.

    Read full article
    Fibroids
    Editorial
    2024

    The fibroid crisis in Black women: more work to be done!

    Michel R, Nicholson W, Borahay M • American Journal of Obstetrics & Gynecology (2024)
    Population: Black women

    Editorial examining the unique burden of uterine fibroids in Black women, emphasizing the intersection of biological and social determinants of health.

    Read full article
    Both
    Global Burden Analysis
    2024

    The global burden of polycystic ovary syndrome, endometriosis, uterine fibroids, cervical cancer, uterine cancer, and ovarian cancer from 1990 to 2021

    Cai QY, et al. • BMC Public Health (2024)
    Population: Global populations

    Global burden analysis examining trends in gynecological conditions including PCOS and fibroids across different populations and regions.

    Read full article
    PCOS
    Policy Analysis
    2024

    Why Black Women Need Polycystic Ovarian Syndrome to Be Treated as a Reproductive Justice Issue

    The Century Foundation • Policy Commentary (2024)
    Population: Black women

    Policy analysis examining PCOS through a reproductive justice lens, highlighting systemic barriers faced by Black women.

    Read full article
    PCOS
    Investigative Report
    2024

    Why PCOS Goes Underdiagnosed in Black Women

    Capital B News • Health Journalism (2024)
    Population: Black women

    Investigative report examining factors contributing to PCOS underdiagnosis in Black women, including healthcare bias and access barriers.

    Read full article
    Nutrition & Diet
    Meta-Analysis
    2024

    Effect of oral consumption of vitamin D on uterine fibroids: a systematic review and meta-analysis of randomized clinical trials

    Alsharif SA, Baradwan S, Alshahrani MS, Khadawardi K, et al. • Nutrition and Cancer (2024)
    Population: Women with uterine fibroids enrolled in randomized trials

    Pooled the randomized trials that tested vitamin D supplements against placebo in women with fibroids, giving the clearest picture available of whether supplementing actually changes fibroid size.

    Read full article
    Nutrition & Diet
    Systematic Review
    2024

    Role of omega-3 fatty acids in improving metabolic dysfunctions in polycystic ovary syndrome

    Albardan L, Platat C, Kalupahana NS • Nutrients (2024)
    Population: Women with PCOS across published trials

    Reviews the trial evidence on omega-3 fats in PCOS and the biological pathways through which they act on insulin resistance and inflammation.

    Read full article
    Nutrition & Diet
    Meta-Analysis
    2024

    Optimizing vitamin D status in polycystic ovary syndrome: a systematic review and dose-response meta-analysis

    Cochrane KM, Bone JN, Williams BA, Karakochuk CD • Nutrition Reviews (2024)
    Population: Women with PCOS in supplementation trials

    Combined vitamin D supplementation trials in PCOS to answer a practical question: how much vitamin D is needed to move blood levels into a sufficient range.

    Read full article
    PCOS
    Review
    2023

    Racial and ethnic disparities in polycystic ovary syndrome

    VanHise K, Wang ET, Norris K, Azziz R, et al. • Fertility and Sterility (2023)
    Population: Multi-ethnic populations

    Comprehensive review of racial and ethnic disparities in PCOS diagnosis, presentation, and treatment outcomes.

    Read full article
    PCOS
    Qualitative Study
    2023

    Concerns and expectations in women with polycystic ovary syndrome vary across age and ethnicity: findings from PCOS Pearls Study

    Elghobashy M, Lau GM, Davitadze M, et al. • Frontiers in Endocrinology (2023)
    Population: Multi-ethnic women with PCOS

    Qualitative study exploring perceptions and lived experiences of women with PCOS across different age groups and ethnicities.

    Read full article
    PCOS
    Longitudinal Analysis
    2023

    Factors associated with self-report of polycystic ovary syndrome in the Coronary Artery Risk Development in Young Adults study (CARDIA)

    Kim C, et al. • BMC Women's Health (2023)
    Population: CARDIA study participants

    Analysis of PCOS self-reporting patterns in a diverse cohort from the CARDIA study, examining racial and socioeconomic factors.

    Read full article
    Fibroids
    Review
    2023

    Uterine fibroids - Causes, impact, treatment, and lens to the African perspective

    Sefah N, et al. • Frontiers in Pharmacology (2023)
    Population: African women

    Comprehensive review examining uterine fibroids from an African perspective, addressing unique challenges and treatment approaches.

    Read full article
    Fibroids
    Systematic Review
    2023

    Racial Disparities in Uterine Fibroids and Endometriosis: A Systematic Review and Application of social, structural, and political context

    Katon JG, Plowden TC, Marsh EE • Fertility and Sterility (2023)
    Population: Black and white women of reproductive age in the United States

    Systematic review of racial differences in uterine fibroids and endometriosis, read through the social, structural and political conditions that shape who gets diagnosed and treated well.

    Read full article
    Infertility
    Review
    2023

    Navigating Unequal Paths: Racial Disparities in the Infertility Journey

    Steinberg Weiss M, Marsh EE • Obstetrics & Gynecology (2023)
    Population: Historically marginalized patients seeking fertility care in the United States

    Review of how racial disparities show up across the whole infertility journey, not only in treatment success rates, framed through reproductive justice.

    Read full article
    Nutrition & Diet
    Clinical Guideline
    2023

    Recommendations from the 2023 International Evidence-based Guideline for the Assessment and Management of Polycystic Ovary Syndrome

    Teede HJ, Tay CT, Laven JJE, Dokras A, Moran LJ, Piltonen TT, et al. • The Journal of Clinical Endocrinology & Metabolism (2023)
    Population: International, developed with 39 professional societies and consumer input

    The international guideline that most clinicians now follow. It places nutrition and lifestyle as first line care for PCOS/PMOS rather than an afterthought.

    Read full article
    Nutrition & Diet
    Narrative Review
    2023

    Glycemic index and glycemic load estimates in the dietary approach of polycystic ovary syndrome

    Manta A, Paschou SA, Isari G, Mavroeidi I, Kalantaridou S, Peppa M • Nutrients (2023)
    Population: Women with PCOS

    A review of how carbohydrate quality affects insulin resistance, androgens and ovulation in PCOS, and what that means for building a practical plate.

    Read full article
    Nutrition & Diet
    Meta-Analysis
    2023

    Effects of n-3 polyunsaturated fatty acid on metabolic status in women with polycystic ovary syndrome: a systematic review and meta-analysis

    Zhou J, Zuo W, Tan Y, Wang X, Zhu M, Zhang H • Journal of Ovarian Research (2023)
    Population: Women with PCOS in randomized controlled trials

    Pooled randomized trials of omega-3 supplementation in PCOS to measure the size of the effect on insulin, cholesterol and inflammation.

    Read full article
    Nutrition & Diet
    Prospective Cohort Study
    2022

    Vitamin D and uterine fibroid growth, incidence, and loss: a prospective ultrasound study

    Harmon QE, Patchel SA, Denslow S, LaPorte F, Cooper T, Wise LA, Wegienka G, Baird DD • Fertility and Sterility (2022)
    Population: Black women ages 23 to 35, Detroit

    The Study of Environment, Lifestyle and Fibroids followed Black women with repeat ultrasounds to see whether vitamin D status changed how fibroids grew over time, not just whether they were present.

    Read full article
    Infertility
    Retrospective Cohort
    2021

    Tubal Factor Infertility, In Vitro Fertilization, and Racial Disparities: A Retrospective Cohort in Two US Clinics

    Anyalechi GE, Wiesenfeld HC, Kirkcaldy RD, Kissin DM, Haggerty CL, Hammond KR, et al. • Sexually Transmitted Diseases (2021)
    Population: Patients undergoing in vitro fertilization at two United States clinics

    Retrospective cohort at two United States fertility clinics comparing tubal factor infertility diagnoses and in vitro fertilization outcomes across racial groups.

    Read full article
    Period Poverty
    Cross-Sectional Survey
    2021

    Period poverty and mental health implications among college-aged women in the United States

    Cardoso LF, Scolese AM, Hamidaddin A, Gupta J • BMC Women's Health (2021)
    Population: College attending women across the United States (n = 471)

    National online survey of 471 college attending women in the United States measuring how often they could not afford menstrual products and how that tracked with depression.

    Read full article
    Nutrition & Diet
    Meta-Analysis
    2021

    Effects of probiotic and synbiotic supplementation on insulin resistance in women with polycystic ovary syndrome: a meta-analysis

    Miao C, Guo Q, Fang X, Chen Y, Zhao Y, Zhang Q • Journal of International Medical Research (2021)
    Population: Women with PCOS in randomized controlled trials

    Pooled randomized trials testing probiotic and synbiotic supplements against placebo in women with PCOS, focused on insulin resistance measures.

    Read full article
    Nutrition & Diet
    Prospective Cohort Study
    2020

    Dietary fat intake and risk of uterine leiomyomata: a prospective ultrasound study

    Brasky TM, Bethea TN, Wesselink AK, Wegienka GR, Baird DD, Wise LA • American Journal of Epidemiology (2020)
    Population: Black women ages 23 to 35 in the SELF cohort

    Used standardized ultrasounds instead of clinical diagnosis so that fibroids in women without symptoms were still counted, then compared results against detailed diet records.

    Read full article
    Nutrition & Diet
    Case-Control Study
    2019

    Adherence to the Mediterranean Diet, dietary patterns and body composition in women with polycystic ovary syndrome

    Barrea L, Arnone A, Annunziata G, Muscogiuri G, Laudisio D, Salzano C, et al. • Nutrients (2019)
    Population: 112 women with PCOS and 112 matched controls, Italy

    Compared women with PCOS against matched controls on how closely they followed a Mediterranean eating pattern, along with body composition and markers of inflammation.

    Read full article
    Nutrition & Diet
    Clinical Trial
    2019

    Does a restricted energy low glycemic index diet have a different effect on overweight women with or without polycystic ovary syndrome?

    Shishehgar F, Mirmiran P, Rahmati M, Tohidi M, Ramezani Tehrani F • BMC Endocrine Disorders (2019)
    Population: Overweight women with and without PCOS, Iran

    A 24 week intervention testing whether the same calorie restricted low glycemic index diet works differently for women with PCOS than for women without it.

    Read full article
    Nutrition & Diet
    Cross-sectional Study
    2016

    Soy-based infant formula feeding and ultrasound-detected uterine fibroids among young African-American women with no prior clinical diagnosis of fibroids

    Upson K, Harmon QE, Baird DD • Environmental Health Perspectives (2016)
    Population: 1,553 Black women ages 23 to 35, Detroit

    Asked whether phytoestrogen exposure during infancy through soy formula shows up decades later as ultrasound detected fibroids in young Black women.

    Read full article
    Nutrition & Diet
    Prospective Cohort Study
    2014

    Prospective study of dietary fat and risk of uterine leiomyomata

    Wise LA, Radin RG, Kumanyika SK, Ruiz-Narváez EA, Palmer JR, Rosenberg L • The American Journal of Clinical Nutrition (2014)
    Population: Black women in the Black Women's Health Study

    Examined whether the type of fat in the diet, rather than total fat, is related to fibroid development in Black women followed for over a decade.

    Read full article
    Nutrition & Diet
    Cross-sectional Study
    2013

    Vitamin D and the risk of uterine fibroids

    Baird DD, Hill MC, Schectman JM, Hollis BW • Epidemiology (2013)
    Population: 1,036 Black and white women ages 35 to 49, Washington DC area

    Community based ultrasound study of 1,036 women ages 35 to 49 that measured blood vitamin D and screened every participant for fibroids, so cases were not missed because of symptoms alone.

    Read full article
    Nutrition & Diet
    Randomized Controlled Trial
    2013

    Treatment of symptomatic uterine fibroids with green tea extract: a pilot randomized controlled clinical study

    Roshdy E, Rajaratnam V, Maitra S, Sabry M, Allah AS, Al-Hendy A • International Journal of Women's Health (2013)
    Population: 39 women ages 18 to 50 with symptomatic fibroids

    A four month placebo controlled pilot trial of 800 mg a day of green tea extract standardized to EGCG in women with symptomatic fibroids.

    Read full article
    Nutrition & Diet
    Prospective Cohort Study
    2011

    Intake of fruit, vegetables, and carotenoids in relation to risk of uterine leiomyomata

    Wise LA, Radin RG, Palmer JR, Kumanyika SK, Boggs DA, Rosenberg L • The American Journal of Clinical Nutrition (2011)
    Population: 22,583 Black women in the Black Women's Health Study

    Ten years of follow up in the Black Women's Health Study, connecting what participants ate with ultrasound or surgery confirmed fibroid diagnoses.

    Read full article
    Nutrition & Diet
    Prospective Cohort Study
    2010

    A prospective study of dairy intake and risk of uterine leiomyomata

    Wise LA, Radin RG, Palmer JR, Kumanyika SK, Rosenberg L • American Journal of Epidemiology (2010)
    Population: 22,120 Black women in the Black Women's Health Study

    Looked at whether dairy foods are related to fibroid risk in Black women, a group with both high fibroid rates and low average dairy intake.

    Read full article
    Nutrition & Diet
    Randomized Controlled Trial
    2010

    Effect of a low glycemic index compared with a conventional healthy diet on polycystic ovary syndrome

    Marsh KA, Steinbeck KS, Atkinson FS, Petocz P, Brand-Miller JC • The American Journal of Clinical Nutrition (2010)
    Population: 96 overweight and obese premenopausal women with PCOS

    A randomized trial comparing a low glycemic index diet with a conventional healthy diet of matched calories in women with PCOS, run until weight loss reached a set target.

    Read full article
    Nutrition & Diet
    Case-Control Study
    1999

    Diet and uterine myomas

    Chiaffarino F, Parazzini F, La Vecchia C, Chatenoud L, Di Cintio E, Marsico S • Obstetrics & Gynecology (1999)
    Population: 843 women with fibroids and 1,557 controls, Italy

    One of the first case control studies to link everyday eating patterns with fibroids, comparing 843 women with confirmed fibroids against 1,557 without.

    Read full article

    Stay updated on the latest research

    New studies are published regularly. Follow our work to stay informed about research on PCOS and fibroids in BIPOC communities.

    Through our SheSpeaks Research Equity Project, we lead community driven research that centers BIPOC experiences and fills critical gaps in understanding.

    Sources & references for the stats above

    These figures are drawn from the peer-reviewed literature and federal data cited below. Each featured study links directly to its own paper.

    1. Racial and Ethnic Differences in the Pathogenesis and Clinical Manifestations of Uterine LeiomyomaCatherino WH, Eltoukhi HM, Al-Hendy A • Seminars in Reproductive Medicine • 2013 • Fibroid prevalence is roughly three times higher among women of African ancestry
    2. Delayed diagnosis and a lack of information associated with dissatisfaction in women with polycystic ovary syndromeGibson-Helm M, Teede H, Dunaif A, Dokras A • The Journal of Clinical Endocrinology & Metabolism • 2017 • Of 1,385 respondents, 33.6% waited more than two years for a diagnosis and 47.1% saw three or more health professionals before being diagnosed
    3. NIH RePORTER, federally funded research project databaseU.S. National Institutes of Health • 2024 • FY2023 awards: ~$33M across 87 PCOS projects; ~$31M across 47 uterine fibroid projects
    4. Gender Disparity in the Funding of Diseases by the U.S. National Institutes of HealthMirin AA • Journal of Women's Health • 2021 • In nearly three-quarters of cases where a disease affects primarily one gender, NIH funding favors male-predominant conditions relative to disease burden